Showing posts with label diabetes blog week. Show all posts
Showing posts with label diabetes blog week. Show all posts

Friday, May 13, 2011

Awesome Things

Today's post for Diabetes Blog Week is about Awesome Things:
In February the #dsma blog carnival challenged us to write about the most awesome thing we’d done DESPITE diabetes.  Today let’s put a twist on that topic and focus on the good things diabetes has brought us.  What awesome thing have you (or your child) done BECAUSE of diabetes?  After all, like my blog header says, life with diabetes isn’t all bad!

So, last summer I discovered a site for the group called Connected in Motion. They provide different outdoor events for people with type 1 diabetes, in the belief that we all have a lot of valuable lived-knowledge about diabetes that we to share with and learn from one another. I saw that they had a weekend canoe trip planned for the end of August...

FLASH BACK TO SEVERAL YEARS EARLIER: I remember friends had asked me to go camping with them. I remember noting that we would need to brainstorm about food, because at the time I was on shots and very sensitive to insulin... which meant that any exercise (like carrying a bag of groceries!) meant dealing with lows. I remember them saying there wasn't a lot of exercise involved, so I should be fine. "But, isn't there hiking/portaging and canoeing?" I asked. "Yes," they replied, "but it's really not that much exercise." To which my brain thought: These are my friends and I love them, but there is no way in hell I'm going out into the woods with them. So, I had always wondered what I was missing out on in these trips... So, figuring that everyone on the trip would be kind of in the same boat (no pun intended... ha!) I signed up for the canoe/camping trip with Connected in Motion.

Now, here's how I remember the conversation with my parents after I signed up for this trip:

Parents: So, do you know anyone else going on the trip?
Me: No.
Parents: Do you know people that have done the trips before, then?
Me: Nope.
Parents: Well, how did you find out about it?
Me: I found it on the internet.
Parents: (Silence)
Me: It's going to be fiiiiine. I think maybe I do know someone who knows something about them... ?


That trip was the first time ever that I got to hang out with people that had type 1 diabetes. I kind of underestimated how great that would be. I didn't have to explain diabetes or glucometers or lows or highs to anyone. I didn't have to ask people if they minded stopping so I could test my blood; I just said I needed to or did it and people understood. (Which made me realize I should never really ask. I should just tell people it's going to happen, stop and do it.) It also felt pretty great to be able to do something that I felt like I would never get to do. After that trip, if anyone had asked if I wanted to go camping/canoeing I felt like I had the tools and knowledge to be able to do so. 

Anyway, I thought this was a good story for this post because it's not just something I did despite diabetes, but also because of diabetes... And not just my diabetes, but everyone's on the trip: without their support and knowledge I wouldn't have been able to achieve what I had that weekend.

About six months later I went to another event hosted by Connected in Motion. At one point we all gathered and figured out how long each of us had had diabetes... then we added up all those years to see how much live experience was sitting in the room:


Thursday, May 12, 2011

Ten things I dislike about diabetes...

Having a positive attitude is important . . . but let’s face it, diabetes isn’t all sunshine and roses (or glitter and unicorns, for that matter).  So today let’s vent by listing ten things about diabetes that we hate.  Make them funny, make them sarcastic, make them serious, make them anything you want them to be!!

I don't know if this makes me weird, but I had a hard time coming up with a list of ten. (Serious???) Seriously. (WTF?!?) I know...

I didn't think it would be that hard, but I could think of things that I find annoying or that I maybe even severely dislike... I couldn't think of things that I HATE. I feel like diabetes is so a part of me at this point that it feels like saying I hate myself... and I think if I felt like that I would just stop dealing with all of it, so I kind of don't really want to ever feel like that about it... 

In light of this strange conundrum, I made this about things that I dislike about having diabetes. Hope that's okay.

Here are my top ten dislikes:
  1. Going low
  2. Going low and not realizing it until it's really, really low... and inadvertently eating the top of the glucose tab tube, because it's the same width and height
  3. Eating extra food when you go low and you've already eaten... Teletubbies tummy (See image below.)
  4. Eating after you throw-up, so you don't go low
  5. How much more complicated it makes having other illnesses, even just a cold
  6. That doctor's blame all other physical symptoms as complications of diabetes, even when they have nothing to do with diabetes... and they're not even recognized as complications of diabetes
  7. Writing papers (the stress and sitting around make my blood sugars go high)
  8. The sawdust-mouth feel that goes along with a high
  9. All the extra medical gear I have to lug around  (when I travel it's half my luggage!)
  10. The sense of isolation when you don't have people around that understand/have diabetes
I can say out of all of those, the one thing I really do hate is going low. I'm so sensitive to insulin it really doesn't take much for me to take a nose dive, though it has been better on the pump and when I stay away from certain foods. Sitting at a 1 mmol/L is a pretty disgusting and frightening experience.

Dramatization of #3

Wednesday, May 11, 2011

Diabetes Bloopers


Whether you or your loved one are newly diagnosed or have been dealing with diabetes for a while, you probably realize that things can (and will) go wrong.  But sometimes the things that go wrong aren’t stressful - instead sometimes they are downright funny!  Go ahead and share your Diabetes Blooper - your “I can’t believe I did that" moment - your big “D-oh” - and let’s all have a good laugh together!!

This isn't necessarily a diabetes d'oh moment, but it is my favouritest ever medical moment! (Actually, the one I referenced in the previous post...)

It happened the first morning I was in the hospital after finding out I had diabetes. Unbeknownst to me Nurse H, the heavily perfumed and make-upped diabetes nurse, would waltz into my room at a bright and early 6 am. VERY CHIPPER. She carried with her a scale and a class full of nursing students. 

Later, I would find out, I was the talk of the ward, as no one there had ever seen a real live type 1 diabetic (I am assuming at that point 'diabetic' was all they saw me as, because most of them certainly didn't treat me like a person...) 

At any rate, in paraded Nurse H and her posse of students. She then cheerily woke me up from near DKA coma state, threw down that scale and happily ordered me to jump out of bed and hop on. 

Now, I'm sure anybody reading this who has diabetes knows all too well that you don't feel too shit hot after having high blood glucose levels for weeks on end. But I don't want to assume everyone reading this knows, so just in case you don't, let's just say I wasn't too into the idea of waking up and getting out of bed... Or, actually, let's just say I was maybe only capable of partial consciousness...

Blearily, I rolled out of bed and tried really, really hard to stand on that scale. REALLY HARD... but I kept falling off. I just couldn't seem to balance right and every time Nurse H went to read my weight I'd start tilting over and have to step off one foot to steady myself. Me being bright I thought up the perfect solution, and put my arms straight out to steady myself... but I still kept falling off. 

Of course, I thought it was hilarious and proceeded to express this by giggling really loud... Somehow, though, when I looked around, no one else was laughing-- actually, I would say they were all pretty flippin' serious... Which made me laugh even harder, because it made in all the more absurd.

At this point, we come to my proudest medical moment ever, because as I wobbled around with my arms out-stretched and giggling, I yelled out: 

"Oh my God!!!! I'M LIKE AN AIRPLANE!!!!!!!!!!" 

Nobody laughed. I still don't know how they got me to eventually stand on that scale. I was completely out of my head...

My only regret in the whole incident is not having had the wherewithal to have caught a glimpse of Nurse H's face, because I am sure she was mortified... She was, after all, showing off her only ever type 1 specimen. 

From time to time I wonder if the student nurses that attended class that day walked away thinking my actions prototypical behaviours for type 1 diabetes... Secretly, as long as they didn't end up working in diabetes care, I kind of hope that's exactly what they took away from that morning.

Tuesday, May 10, 2011

Letter Writing Day


You can write a letter to diabetes if you’d like, but we can also take it one step further.  How about writing a letter to a fictional (or not so fictional) endocrinologist telling the doctor what you love (or not) about them.  How about a letter to a pretend (or again, not so pretend) meter or pump company telling them of the device of your dreams?  Maybe you’d like to write a letter to your child with diabetes.  Or a letter from your adult self to the d-child you were.  Whomever you choose as a recipient, today is the day to tell them what you are feeling.

Dear 15-year-old Self,

If this time-machine thing works out as planned, it's January of 1994 and you're sitting in the car on the way to the hospital. Yes, you have diabetes. No, no matter how much you bargain with the ether, it isn't going to go away. You are about to enter a medical system that does not do well with informing young people of what is going on. So, let me give you the heads up on some of the things that are going to happen over the next eight days:
  1. When your parents bring you toileteries from home MAKE SURE THEY BRING YOU SOME DECENT/NORMAL SMELLING SOAP. The Bacto-Stat soap they give you to use in the hospital smells like disease. So discomforting.
  2. They are going to TAKE YOUR BLOOD EVERY FOUR HOURS, EVEN IN THE MIDDLE OF THE NIGHT. It will freak you right out the first night, because nobody told you it was coming. 
  3. They are going to WAKE YOU UP AT 6 AM THE FIRST DAY YOU ARE THERE. Since you are still practically in a coma you will do something (that maybe only you ever find) incredibly funny. Enjoy it. 
  4. That first morning they wake you up at 6 am THEY WILL BRING AN ENTIRE NURSING CLASS TO OBSERVE YOU. No one will ask if it's okay. They will just barge right in like it is their right to do so. If you don't want them there, tell them to leave... but not until after you do the incredibly funny thing.
  5. There will be a nurse that comes in to your room. She will not even greet you. Whatever you do, DO NOT LET THIS NURSE GRAB YOUR ARM! She will take something called a Heparin Lock (or Hep-Lock). It will look like a long large gauge needle and she will just shove it in your arm. They will tell you it is so they can take blood from this IV instead of always taking it from your arm, where it will hurt and bruise. BEWARE: This is a lie! There will be only one nurse with the Heparin and she will generally not be available. Then, they will just take the blood from your arm anyways!!! So, for the love of God, I repeat: DO NOT LET THIS NURSE GRAM YOUR ARM.
In general, diabetes will be a lonely disease for a very long time. People will help out (and that will be awesome), but no matter how many are in the waiting room you still have to learn to go into those doctor encounters alone. Growing up people will feel badly for you, they may call you 'brave' or 'courageous'... even though you don't feel sad for yourself, nor brave about any of it. Don't let people treat you like your porcelain or fragile (I know that you won't!) Don't strive to be normal-- it's a bullshit social construct. Do visit the Banting House in London, ON sooner; it will give you a greater appreciation for wonderful it is that you get to finish high school, go to university (ugh, THREE degress... I know), make great friends and love a lot. Most of all feel proud of yourself, because you will handle a complex chronic illness (in combination with the lot of crappy life circumstances you already know about) with grace and determination... and that's all anybody can ask.

Sincerely and with love,
Your 33-year-old self.

    Monday, May 9, 2011

    Admiring Our Differences

    This week is Diabetes Blog Week and the first topic is 'Admiring Our Differences':
    We are all diabetes bloggers, but we come from many different perspectives. Last year, Diabetes Blog Week opened my eyes to all of the different kinds of blogs (and bloggers) out there – Type 1s, Type 2s, LADAs, parents of kids with diabetes, spouses of adults with diabetes and so on. Today let’s talk about how great it is to learn from the perspectives of those unlike us! Have you learned new things from your T2 friends? Are D-Parents your heroes? Do LADA blogs give you insight to another diagnosis story? Do T1s who’ve lived well with diabetes since childhood give you hope? Pick a type of blogger who is different from you and tell us why they inspire you - why you admire them - why it’s great that we are all the same but different!!
    I have a confession: I always thought that LADA or latent autoimmune diabetes in adults was just like Type 1, except in adults... BUT...

    Not too long ago I was writing a definition about diabetes mellitus for a paper. I had a lot of resources about Type 1 and Type 2 diabetes, but nothing about that type somewhere in-between: Type 1.5. I found a snippet here and there in different books or articles, but couldn't find all that much. I thought maybe it would be best to ask a real expert about LADA and sent a tweet to @Diabetic_Iz_Me, a.k.a. Cherise, who has had LADA since 2004. Cherise referred me to one of her favourite sites: the Islets of Hope page. From there I was able to find a lot of references and information... and learn lots about how my assumptions of this Type 1.5 were WRONG.

    From what I read (and please correct me if I am wrong) LADA starts off looking a lot like Type 2, except unlike Type 2 there are certain autoantibodies present that are linked with the destruction of beta cells. In Type 1 there are way more autoantibodies and the beta cells die off much more quickly, but in LADA there is only one or two of these autoimmune proteins and the pancreas cells are destroyed much more slowly. Every person's diabetes is unique and requires individual plans of care, but the average time it takes a person with LADA to require insulin injections is around 4 years. So, kind of similar, but still different. I was glad to have the opportunity to challenge my assumptions and learn something new. I was also glad to have someone open to questions and willing to inform (Thanks Cherise!).

    Sunday, May 30, 2010

    Oh, wait...

    When I thought about the idea of a cure for diabetes this morning a picture of myself jumping up and down and dancing and yelling/singing "Cure! Cure! Cure!" on the grass of my front yard flashed through my mind... So, I guess my reaction would depend on the day that a cure arrived.

    Thursday, May 27, 2010

    Dream a little dream- Life after a cure... Diabetes Blog Week- Day 7 (Ha! I did it!)

    Lightyears ago, when I was working in a little used bookstore on Queen Street, my boss told me this story about his brother... He said that his brother had a form of epilepsy. I don't remember the name of it exactly, but he had frequent and severe seizures. He was on a fair amount of medication to curb them, but at some point brain surgery became an option. So, he went through with the surgery and the doctors were fairly certain they'd removed the part of the brain that was responsible for the seizures. He was so terrified of them returning though, he refused to stop taking the medication they'd first prescribed him.

    I tell you this, because it was one of the first things that came to my mind when I read this final topic for the Diabetes Blog Week was this story. And, honestly, if suddenly the perpetual five-year-plan until the cure for diabetes was up and sitting there was a cure... I think I'd still be testing my blood sugars for a good long while after: Every time I got thirsty. Every time I felt tired. Every time I got shaky. And, yeah, it would probably subside a bit over time, but I'd always wonder if and when it were coming back.

    Another story that came to mind: when I started using an insulin pump it totally a positive change for me... physically. For the first time that I can remember I wasn't tired all the time. I think I mentioned somewhere here before, but when I told one of the nurses/diabetes educators helping make the transition to the pump she told me that this was fairly common. Apparently long acting insulins are pretty hard on your body. NPH, the crap stuff that I was on for a large part of my MDI routine, is notoriously nasty... which why it is affectionately referred to as "Not Particularly Helpful" amongst some medical professionals. That plus the fact that I spent years with impossible to avert daily lows, some of which were so low I felt like they were digging my grave for me, I got kind of pissed off that it took sooooo long for me get on the pump.

    Actually, I don't even think I realized until I just wrote those words, that a lot of my anger when I got my pump was probably related to me being resentful for all those years of crappy insulins (remember the infernal Regular and Lente???) and multiple daily injections. I know it works great for a lot of people. But, really, that stuff was my own private hell, which is something I couln't realize until a better way of being came along... kind of what I think the shift from insulin pump to cure would be like...

    Finally, my very first knee-jerk reaction when I read the topic for today's post: I've met so many awesome people because of my diabetes, I have to admit that I had a moment of sadness thinking that our relationship might go away without the common link of illness. Which I know isn't true- I think the relationship would just change. We might not have the same day to day struggles with the "D-beast", but I think we'd always have the lingering link of being ex-D-beast peoples. At least, I hope we would all stay in touch. I would miss you guys if you all went away. I guess the second thing I realize as I write this- my online D-friends aren't just diabetes support; sometimes you guys are life support. Which is great, so I wouldn't want that side-effect to be cured along with the broken pancreas.

    Anyway, I don't mean to end the week on a bummer note. Nor do I don't mean to suggest that I wouldn't jump at a cure in a nano-second or that I wouldn't be happy (extremely happy!) or grateful. I think, though, that having recently just made the shift from needles to insulin pump, the reality of good things sometimes being a mixed bag is still very much a reality for me. And, maybe like most things in life, it's just complicated.

    Here, though, I'll end with some happier thoughts:
    - Having said all that, I'd totally test the limits of my new found food freedom by a one-time gorge on deep-fried ice cream. I don't know why, but I really get a hankering for that stuff every now and then... and cherries. I really like cherries... and pie. Cherry pie, of course. Stawberry-rhubarb too. Pie is one of the worst things to carb count.
    - I think I'd also keep my pump by my pillow as a nightlight, 'cause I've gotten kind of attached to the little guy. I might even wear it around in public occassionally and tell everyone it's my new super gigantic pager...
    - And my last, somewhat perverse thought? I'd tell everyone my diabetes was coming back in five years... just so that if it really were creeping back, it would take it's dear sweet time about it.

    Wednesday, May 26, 2010

    Diabetes Snapshots... Diabetes Blog Week- Day6... almost there!

    This is Pump-kin...


    And this is my relationship to Pump-kin in pictures...








    For better or for worse, we are attached at the arm.

    Sunday, May 23, 2010

    Let's get moving... Diabetes Blog Week- Day 5 + then some...

    Oh, exercise. It's kind of difficult when you're in school to do anything but school... But, I try!

    I used to run, but my hip joints are kind of messed up and running started to really hurt. So, that was the end of running. Instead, I walk a lot now. Usually about 45 minutes to an hour everyday. I should really do more variety of things, but right now it's kind of difficult because it's finals crunch time. It's kind of frustrating, because it ends up affecting my weight and, or course, my blood sugars.

    You know what keeps you pretty active though: looking after kids! More specifically, I would say, the younger the kids and the greater the number the greater the work out! I worked as a nanny for like 10 years throughout my first degree and several years later. I noticed the biggest difference when I looked after the three young children I was with for about five years. Whenever I was on holidays my blood sugars would go up and then I'd adjust my insulin to compensate... and then back down again once I started working again. I was always amazed
    how much less insulin I needed going back to work... I guess lifting, carrying and running after twenty-some-odd pounds of little people throughout the day adds up!

    The other thing that would need to re-adjust when I went back to work is my tolerance for noise, but that's not really diabetes related ;-)

    Thursday, May 20, 2010

    To Carb or Not to Carb... Diabetes Blog Week- Day4 + then some...

    I'm a carber. I like carbs. Maybe even too much.

    I think I learned how to stuff my face a little too well when on MDI. Because I always needed half-doses of insulin I had to eat to cover my insulin a lot. I don't think I fully realized how many carbs I was eating until I started on the pump and things got much more precise. I was glad for that, because it meant I have a lot fewer lows... but it was a little shocking! Also, I found that some carbs that were okay on MDI are just too difficult to bother with (at least on a regular basis) when I switched to the pump. Pasta and rice are a pain. I always end up spiking at some unforseen time. And, bread is just tricky to judge...

    Anyway, basically I like carbs and I'm going to continue liking the carbs, but we're still figuring out how best to work together :)

    I thought this was a funny carb joke... meat is soooo clueless ;)

    Monday, May 17, 2010

    Your biggest support(er)... Diabetes Blog Week- Day 3 + then some

    Right. So, back on track here... though a little late.

    When I was in the ER I thought about this question a lot. Who is my biggest supporter?

    Well, if I had to choose a biggest supporter(s), it would be the D-OC. I don't mean that my parents and my friends aren't supportive, but before I found out there were all these people online with diabetes I felt really different and no one really understood any of what it was like to live with diabetes.

    Particularly poignant in this journey was when I got my insulin pump. I was really excited before I got it, but once I had to wear it all the time I realized that diabetes was no longer something that I could test, inject and then put away in my bag- it became something that was with me all the time. My pump became a memento mori of sorts, always there to remind me of the diabeetus. And, from there, I felt an anger about having diabetes that I'd never felt in my life. I got angry that everyone else I met got to eat whatever they wanted and didn't have to input it into a stupid machine. I got angry that my body failed me in a way that no one else understood. And then I got super angry and sad when one day I got on the subway are realized that everyone was starring at my infusion site on my arm and the pump on my hip... I got angry, because all of the sudden I realized I'm different and there was no one around who got any of it...

    I know a lot of people read about my visit to the Banting House museum back in January where I think I came to terms with a lot of the major angry feelings that were bothering me (I say MAJOR feelings, because I still have those days when I want to throw my pump and meter across the room!). But, anyway, coming to terms was some of that stuff wasn't just about the visit. I think it was also because for the first time in my life I had people to talk or even just see online that were like me. So, whether I talk to you about diabetes or read your blog or just even see that your online... and whether you have diabetes or have diabetes by default because you are speaking up for a loved on... I think that you guys are my biggest supports and supporters. I'm really glad I stumbled onto you all and thanks for making me feel at welcome and... dare I say... normal.

    From the bottom of my pump heart: Thanks.

    Sunday, May 16, 2010

    Diabetes Blog Week... THWARTED!


    Well, seems like Lungs got jealous of this weeks spotlight on Defunct Pancreas and decided to rebel. On the weekend I stayed at a friends house, looking after their kids while they went out. I started feeling kind of wheezy and my airway started kind of constricting. I'm allergic to a lot of frangrance and this has happened before. Usually, once I get away from whatever it is that is bothering me, the difficulty breathing dies down. But it kept going... for one day... and then two days... and then on the third day, I started scaring my co-worker with my gasps for breath throughtout the afternoon. I got home and it got worse. The steroid inhaler that I take everyday wasn't helping. I finally decided it was time to haul out the Ventolin, but it did nothing to help either (except annoy Defunct Pancreas and raise my bloodsugars).

    I kind of knew at this point that I was in trouble, but I play this silly game whenever I realize I should visit the ER. In Ontario the government has a service called Telehealth, whereby you can call a number and speak to a registered nurse about medical questions/issues. So, my silly game is that every time I know I should see a doctor I call them first. In my defense, though, sometimes they actually tell me it should be fine to wait to see my family doctor! This was totally not one of those times and the nurse on the other end told me to get my ass to emergency... and, so, I went...

    First thing- visit triage nurse. They are generally grumpy creatures. I don't really blame them; they're the gatekeepers and I imagine they get bugged a lot, but at the same time it is kind of annoying to be the patient on the receiving end of their grumpy... especially when you can't breathe. She looked at my last name and said "Well, that's a weird last name." Then she reached my first name and said, "Oh, well, that's a weird first name so." She didn't comment on my middle name... because it is run-of-the-mill anglo-saxon? Don't know... Anyway, when I told her I was having trouble breathing she told me I seemed to be able to talk just fine. In my mind, I responded something like "Right. I'm just effing with you, 'cause sitting around in the ER is much more palatable way to spent my night than sleeping in my warm bed." In real life, though, I just said, "Oh, it's just my airways feel really constricted." Eventually, I got the wristbands and got to sit back down in the (aptly named) waiting room.

    I'd been through this before and knew that if it being around 11pm when I arrived and not being in any sort of acute/dire emergency, I'd be leaving aroun 5am. I hunkered down and started to read school stuff. South Park was on... then some cosmetics advertising show... then Anderson Cooper... then... I don't remember. At some point I got called in to sit on a bed for about twenty minutes before seeing a doctor.

    I don't particularly like ER doctors. I've had some really nice ones, but every now and then you get the jerks. (Remember that time in high school that I went to the hospital because I was throwing up everything under the sun, but had just taken a huge amount of insulin... and they "diagnosed" me with a stomach virus (as if I didn't know!), gave me a shot Gravol and sent me home, telling me I didn't need to be in the ER? Or how about the time I had a head injury and they told me the pain was from diabetes?) This time, though, the doctor was awesome! She listened to what I had to say and didn't relate any symptoms to my diabetes (bonus!) and was actually kind of funny (double bonus!)

    Then, I went to a set of chairs to wait for chest x-rays to be done. The guy to my right was an older man with his son, who had hurt his foot. The guy to my left was a younger guy that had hurt his ankle... and the guy to his left... I don't know why he was there. He was missing his front teeth and was waiting for an x-ray of his neck. I don't think those things were related though. Everyone was really nice. Mostly we just sat in silence, but every now and then the older man beside me would grumble about the wait. I was the second last person to get x-rayed. The technician, coincidentally, also was missing his front teeth! Hockey players? Maybe not...

    X-rays were good though! They let me look at them and the doctor pointed out what all the different parts of the images were... I liked seeing my heart in the middle (well, technically, slightly to one side) of my rib cage. That plus all the bones looked pretty together and I was glad to see that my insides didn't look nearly as bad as I felt they did... In the end, the doctor said that some of my lymph nodes were swollen and she suspected I was getting a cold, which exacerbated my allergies/asthma. She sent me home with a new Ventolin puffer at a higher dose. I had to take four puffs while I was there, before I left. Which, on my way home, led to me hack up a tonne of grossness that had been trapped in my lungs. Sounds icky, but it was the best feeling afterward.

    I was back home and in bed by 5am. I thought that was pretty good time. I'm still not breathing the best, but am not to the point that I'm whistling through my throat/seeing stars... Oh, and I did end up getting that cold (high-five best ER doc ever!). I'm hoping when it passes, things will go back to (my) normal.


    So, that's the story of my jealous Lungs and their attempts at glory. Sorry about missing out on the scheduled posts... But just to teach Lungs a lesson, I plan on completing them anyway over the next week.

    Tuesday, May 11, 2010

    Making the low go... Diabetes Blog Week- Day 2

    I'm not really liking this post topic... My pancreas still makes some insulin, so I don't need super lot of insulin injected. That's lucky in some ways; not in others. Before pumping I would have to eyeball half units on my syringes. It was hit and miss and usually I missed... meaning that I had a lot of lows. A lot of really really bad lows. It got so that I couldn't even feel it until I was around a 1 mmol/l (18 mg/dl)... and that's how learned to over-eat a low: EAT. EVERYTHING. IN. SIGHT. Anyway, eventually I figured out that if I just didn't eat, I didn't have to bolus and I didn't have to go low. Which, I'm sure you can guess, started a whole new problem.

    Things have gotten better the last year or so that I've been on the pump. I have a low maybe once a month and can feel it now at around a 4.5 mmol/l. I usually just keep a juice box in my knapsack to treat a low. If it's not too bad a low though, I usually just dial down my basal for a little bit to cover the lower blood sugar... And, to be honest, that's probably my favourite way to treat a low. I've gotten sick of stuffing my face.

    Monday, May 10, 2010

    A day in the life... with diabetes: Diabetes blog week-- Day 1

    Well, to explain the beginning of my day we have to revisit the night before when I take an itty-bitty amount of an old-skool anti-depressant that makes me drowsy so I can sleep... You need to know this because the beginning of my day is usually spent in a bit of a slow fog. Which means that mornings are scrunched for time, but a bit slow, because I usually end up sleeping in more than I meant. Inevitably what insues is:
    1. Go to bathroom and wash face, take puff of Advair inhaler (only during allergy season), rinse mouth to avoid the side effect of thrush and brush teeth... if I'm actually a bit early in my schedule I may decide to put on mascara
    2. Get dressed, which usually entails having to figure out how to untangle my insulin pump tubing from my bra strap and/or any other piece of clothing it decides to wrap itself around in a completely uncomfortable way
    3. Pack my bags (I know, I should do this the night before!)
    4. Race through the kitchen and grab a breakfast pita/granola bar/fruit and juice box
    5. Walk to transit (either subway or streetcar)
    6. Sit down to ride to placement or class, test my blood sugar, eat, bolus, take anti-depressant and maybe painkillers (over-the-counter or perscription for joint pain)
    7. Start the day
    What follows depends on the day and what I am doing, but tends to look a bit like this:.
    • I test my blood sugar and eat lunch around 1pm. To be honest, I eat a hefty lunch. It is my biggest meal of the day. So...
    • I test my blood again in the afternoon. It's usually fine, but sometimes hefty requires an extra little bolus.
    • Around 5pm or 6pm I usually end up walking home from downtown, where class and placement happen. It's about a 45 minute walk. Sometimes, depending on how I'm feeling I test my blood sugars toward the end of the walk or when I get home.
    • Some days joint pain is worse in the evening, so maybe more painkillers or a nap. When pain is bad, inflammation is bad and blood sugars are bad, so I end up testing and correcting more throughout the evening.
    • Otherwise, I usually (check my blood sugars) have a snack in the evening and sit at my computer and do school work.
    • Around midnight I have my shower, check that my site is ok after (and check that I've reattached it before bed! It happens that I forget-- though I've always remembered once I get into bed and move to place that technical appendage just under my pillow...)
    • I take my smidgeon of groggy pill, a multi-vitamin and eventually fall asleep... zzzzzzz
    And voila! That's the average weekday for me this year.

    PS- to read about the idea of Diabetes Blog Week, please see Karen's Bitter-Sweet Diabetes Blog

    PPS- to read the posts of other participants, please link here: Participant List

    PPPS- Mid-afternoon UPDATE: oh, and today's day-in-the-life also included buying supplies... Two boxes of infusion sets, a box of insulin cartridges, some skip prep... all to last about two months = $441.46 CAD... I'm lukcy in that I get the money back from the provincial government eventually, but sheesh!