Diabetes Art Day 2011

It's been hectic this summer, so I don't have much this year, but I like this day... and I wanted to contribute something... so, I give you this:

and, look, you can meme that:

You can read more about Diabetes Art Day at Lee Ann's blog or the official site.

Awesome Things

Today's post for Diabetes Blog Week is about Awesome Things:

In February the #dsma blog carnival challenged us to write about the most awesome thing we’d done DESPITE diabetes.  Today let’s put a twist on that topic and focus on the good things diabetes has brought us.  What awesome thing have you (or your child) done BECAUSE of diabetes?  After all, like my blog header says, life with diabetes isn’t all bad!

So, last summer I discovered a site for the group called Connected in Motion. They provide different outdoor events for people with type 1 diabetes, in the belief that we all have a lot of valuable lived-knowledge about diabetes that we to share with and learn from one another. I saw that they had a weekend canoe trip planned for the end of August...

FLASH BACK TO SEVERAL YEARS EARLIER: I remember friends had asked me to go camping with them. I remember noting that we would need to brainstorm about food, because at the time I was on shots and very sensitive to insulin... which meant that any exercise (like carrying a bag of groceries!) meant dealing with lows. I remember them saying there wasn't a lot of exercise involved, so I should be fine. "But, isn't there hiking/portaging and canoeing?" I asked. "Yes," they replied, "but it's really not that much exercise." To which my brain thought: These are my friends and I love them, but there is no way in hell I'm going out into the woods with them. So, I had always wondered what I was missing out on in these trips... So, figuring that everyone on the trip would be kind of in the same boat (no pun intended... ha!) I signed up for the canoe/camping trip with Connected in Motion.

Now, here's how I remember the conversation with my parents after I signed up for this trip:

Parents: So, do you know anyone else going on the trip?

Me: No.

Parents: Do you know people that have done the trips before, then?

Me: Nope.

Parents: Well, how did you find out about it?

Me: I found it on the internet.

Parents: (Silence)

Me: It's going to be fiiiiine. I think maybe I do know someone who knows something about them... ?

That trip was the first time ever that I got to hang out with people that had type 1 diabetes. I kind of underestimated how great that would be. I didn't have to explain diabetes or glucometers or lows or highs to anyone. I didn't have to ask people if they minded stopping so I could test my blood; I just said I needed to or did it and people understood. (Which made me realize I should never really ask. I should just tell people it's going to happen, stop and do it.) It also felt pretty great to be able to do something that I felt like I would never get to do. After that trip, if anyone had asked if I wanted to go camping/canoeing I felt like I had the tools and knowledge to be able to do so. 

Anyway, I thought this was a good story for this post because it's not just something I did despite diabetes, but also because of diabetes... And not just my diabetes, but everyone's on the trip: without their support and knowledge I wouldn't have been able to achieve what I had that weekend.

About six months later I went to another event hosted by Connected in Motion. At one point we all gathered and figured out how long each of us had had diabetes... then we added up all those years to see how much live experience was sitting in the room:

Ten things I dislike about diabetes...

Today's Diabetes Blog Week post is about 10 Things I Hate about Having Diabetes:

Having a positive attitude is important . . . but let’s face it, diabetes isn’t all sunshine and roses (or glitter and unicorns, for that matter).  So today let’s vent by listing ten things about diabetes that we hate.  Make them funny, make them sarcastic, make them serious, make them anything you want them to be!!

I don't know if this makes me weird, but I had a hard time coming up with a list of ten. (Serious???) Seriously. (WTF?!?) I know...

I didn't think it would be that hard, but I could think of things that I find annoying or that I maybe even severely dislike... I couldn't think of things that I HATE. I feel like diabetes is so a part of me at this point that it feels like saying I hate myself... and I think if I felt like that I would just stop dealing with all of it, so I kind of don't really want to ever feel like that about it... 

In light of this strange conundrum, I made this about things that I dislike about having diabetes. Hope that's okay.

Here are my top ten dislikes:

1. Going low
2. Going low and not realizing it until it's really, really low... and inadvertently eating the top of the glucose tab tube, because it's the same width and height
3. Eating extra food when you go low and you've already eaten... Teletubbies tummy (See image below.)
4. Eating after you throw-up, so you don't go low
5. How much more complicated it makes having other illnesses, even just a cold
6. That doctor's blame all other physical symptoms as complications of diabetes, even when they have nothing to do with diabetes... and they're not even recognized as complications of diabetes
7. Writing papers (the stress and sitting around make my blood sugars go high)
8. The sawdust-mouth feel that goes along with a high
9. All the extra medical gear I have to lug around  (when I travel it's half my luggage!)
10. The sense of isolation when you don't have people around that understand/have diabetes

I can say out of all of those, the one thing I really do hate is going low. I'm so sensitive to insulin it really doesn't take much for me to take a nose dive, though it has been better on the pump and when I stay away from certain foods. Sitting at a 1 mmol/L is a pretty disgusting and frightening experience.

Dramatization of #3

Diabetes Bloopers

Today's topic for Diabetes Blog Week is Diabetes Bloopers:

Whether you or your loved one are newly diagnosed or have been dealing with diabetes for a while, you probably realize that things can (and will) go wrong.  But sometimes the things that go wrong aren’t stressful - instead sometimes they are downright funny!  Go ahead and share your Diabetes Blooper - your “I can’t believe I did that" moment - your big “D-oh” - and let’s all have a good laugh together!!

This isn't necessarily a diabetes d'oh moment, but it is my favouritest ever medical moment! (Actually, the one I referenced in the previous post...)

It happened the first morning I was in the hospital after finding out I had diabetes. Unbeknownst to me Nurse H, the heavily perfumed and make-upped diabetes nurse, would waltz into my room at a bright and early 6 am. VERY CHIPPER. She carried with her a scale and a class full of nursing students. 

Later, I would find out, I was the talk of the ward, as no one there had ever seen a real live type 1 diabetic (I am assuming at that point 'diabetic' was all they saw me as, because most of them certainly didn't treat me like a person...) 

At any rate, in paraded Nurse H and her posse of students. She then cheerily woke me up from near DKA coma state, threw down that scale and happily ordered me to jump out of bed and hop on. 

Now, I'm sure anybody reading this who has diabetes knows all too well that you don't feel too shit hot after having high blood glucose levels for weeks on end. But I don't want to assume everyone reading this knows, so just in case you don't, let's just say I wasn't too into the idea of waking up and getting out of bed... Or, actually, let's just say I was maybe only capable of partial consciousness...

Blearily, I rolled out of bed and tried really, really hard to stand on that scale. REALLY HARD... but I kept falling off. I just couldn't seem to balance right and every time Nurse H went to read my weight I'd start tilting over and have to step off one foot to steady myself. Me being bright I thought up the perfect solution, and put my arms straight out to steady myself... but I still kept falling off. 

Of course, I thought it was hilarious and proceeded to express this by giggling really loud... Somehow, though, when I looked around, no one else was laughing-- actually, I would say they were all pretty flippin' serious... Which made me laugh even harder, because it made in all the more absurd.

At this point, we come to my proudest medical moment ever, because as I wobbled around with my arms out-stretched and giggling, I yelled out: 

"Oh my God!!!! I'M LIKE AN AIRPLANE!!!!!!!!!!" 

Nobody laughed. I still don't know how they got me to eventually stand on that scale. I was completely out of my head...

My only regret in the whole incident is not having had the wherewithal to have caught a glimpse of Nurse H's face, because I am sure she was mortified... She was, after all, showing off her only ever type 1 specimen. 

From time to time I wonder if the student nurses that attended class that day walked away thinking my actions prototypical behaviours for type 1 diabetes... Secretly, as long as they didn't end up working in diabetes care, I kind of hope that's exactly what they took away from that morning.